Daylight Savings
11/6/2022
Daylight savings was not an extra hour of rest in our home.
It was just an extra hour of no sleep.
An extra hour of fighting respiratory battles.
An extra hour of repositioning.
An extra hour of adjusting oxygen flow.
An extra hour of going back and forth between bipap and nasal cannula.
An extra hour of waiting to reach out for help.
An extra hour of concern, worry, exhaustion.
An extra hour of praying we don’t lose power again.
An extra hour of fighting the urge to give up.
An extra hour of wondering if this is it.
An extra hour of struggles.
An extra hour of waiting for it to not be too early to brew coffee.
Being tired, overwhelmed and/or frustrated is nothing new over here. When we have middle of the night complications, it’s easy to hit the cry level pretty fast. I get there all the time. Being optimistic or strong is not an easy thing do. It requires a lot of mental will power, of being able to pause and think outside the box. It was a rough night. But though it all I worked to remind myself that I’ll never have to repeat this night again. Sure there will likely be many more just like it, but this night and this moment will not come again. Caring for a child with complex medical needs is a battle, but we forward through the chaos one hour at a time.