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I'm not very tech savvy so you can be assured that this web page will change appearance as I learn the ropes of blogging”
Stacey
Holden tight
An SXI journey
Holden Tight
An honest blog about the incredible journey of raising a child with severe multiple impairments and a terminal diagnosis.
The goal of this blog is to help others who may be going through similar struggles feel less alone. There is nothing more isolating than when your child has so many things wrong that you don’t feel like you belong anywhere. Hopefully, you can feel at home here and cry or laugh along with us as we write about life as we know it.
About me!
Hi! My name is Stacey. I’m in my mid thirties, enjoy candle lit dinners and long walks on the beach. Haahaa, just kidding, let’s get real with each other……..
Contact Me
I’d love to hear from you! I don’t have a commenting feature set up yet but you can email me here.